Welcome to the official website for the 2024 TASH Conference!
Each year, the TASH Conference brings together our constituents to share resources and success stories, learn about field-driven best practices, and network within a community engaged in shared values. The Conference is attended by passionate leaders, experts, and advocates from every corner of the disability community. Conference attendees are influential in their fields and communities, and play an important role in the provision of services and supports for individuals and organizations around the world; and include professors and researchers from leading institutions; those involved in local, state, and federal governments and public policy; special and general educators, and school administrators; self-advocates, adult service providers; students, family members, and many others. This year’s conference theme is Celebrate Together: Let the Good Times Roll!
Click on the "Registration and More" tab for additional information about our Conference location, registration, reserving a guest room, sponsorship and exhibitor opportunities, and more! The full Conference schedule is now available for viewing. Registered attendees will receive an invitation to log in and create a personalized schedule.
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This colloquium centers youth and adults with intellectual and developmental disabilities and complex support needs as essential research partners within six participatory research projects, including inclusive research, participatory action research, community-based participatory research, and youth participatory action research. Each research team embodies the processes and principles of participatory research by how they center and amplify youth and adult experiences and perspectives to influence the policies, practices, scholarship, and systems that impact them most. Authentic equity, justice, access, and inclusion cannot be actualized without the epistemic agency of people with intellectual and developmental disabilities and complex support needs. This session calls for more participatory research controlled by them from theorization to dissemination.
This proposed four-hour session consists of 6 research paper presentations that will last 25 minutes each. We will reserve 10 minutes total for the session chair’s introduction and closing as well as 10 minutes for discussant remarks. There will also be a 10 minute break. This allows for 10 minutes for questions/discussion, dialogue/resource sharing with attendees after each presentation.
5 minutes: Introduction to the overall session and speakers, Colloquium Chair – Hasan Ko
25 minutes: “What Matters Most to Adults with Disabilities in Their Daily Lives: A Nationwide Project” - Paul Betz, Thomas Caswell, Whitley Daper, David Frye, Jess Kilpeck, Hasan Ko, Mark Utter, Nicole Villemaire, Emily Anderson, and Amanda Miller 10 minutes: Questions and discussion
25 minutes: “Participatory Action Research on the Service Planning Experiences of Massachusetts Adults with Intellectual and Developmental Disabilities” – Anne Fracht and Hezzy Smith 10 minutes: Questions and discussion
25 minutes: “Person Centered Planning and Home Community-Based Services on the Move” – David Taylor, Chaquetta Stuckey, and Anne Fracht 10 minutes: Questions and discussion
10 minutes: Break
25 minutes: “Collaborating With And Promoting Youth Voices in Research With Youth With Cerebral Palsy Who Do Not Speak And Who Use AAC” – Ramona Schwartz-Johnston 10 minutes: Questions and discussion
25 minutes: “Applying Inclusive Methods to Shed Light on the COVID-19 Pandemic Experiences of Group Home Residents with Intellectual and Developmental Disabilities in Massachusetts” – Anne Fracht and Hezzy Smith 10 minutes: Questions and discussion
25 minutes: “Working Together as an Inclusive Team” – Pauline Bosma and Oscar Hughes 10 minutes: Questions and discussion
10 minutes: Remarks, Discussant – Amanda L. Miller
The articulation of disability rights principles and models of disability developed by disabled communities is fairly recent. Today, ongoing ignorance of these concepts in broader society significantly limits the general public’s ability to conceptualize any disabled group as one with distinct goals and interests. This has led to a lack of clear, consistent policy from any major political party in regards to accessibility, eugenics, or representative research policy. As a result, disability rights advocates may find themselves with allies and enemies across the political spectrum, with supporters who become oppressors when the issue changes. This talk will discuss relevant policy history, give a brief overview of some of the major areas crucial to policy development in which political values often lead to inconsistency. It will open into a discussion of coalition-building, public awareness and framing of disability rights issues, and self-advocacy.
The historical perception of disability as a defect or abnormality has led to negative stigmas and biases, impacting students with disabilities and special education teachers. Paradigm shifts are necessary to address societal and physical barriers, improve school systems, and support special education teachers, especially early career educators. Students with disabilities face limitations due to these barriers, contributing to teacher turnover and impacting student learning. The presentation will focus on addressing these barriers to attract and retain highly qualified special education teachers. Additionally, the presentation will address the expectations placed on special education teachers and suggest using a social model of disability framework to shift perceptions in educational settings. It also emphasizes the need for an inclusive culture that supports special education teachers from diverse backgrounds.
Tammy Bachrach is a Professor of Special Education at Azusa Pacific University (APU) in Southern California. Prior to assuming her position at APU, Tammy was general and special educator for 18 years, working with both primary and secondary students with disabilities. Tammy grew up... Read More →
Friday December 6, 2024 2:15pm - 3:10pm CST
3RD Floor - Ballroom: Celestin AHyatt Regency, 601 Loyola Avenue, New Orleans, LA 70113
Ableism can be defined as prejudice or bias based on a person's disability and fosters the belief that people with disabilities are inferior. American society values individualism and capitalism, which can promote ableism. Allies and advocates who work in various roles need to raise their consciousness and open their eyes to the ways in which oppression exists. The purpose of this article is to provide advocates, allies, educators, and service providers with tools to critically self-examine their own identity, positionality, and power to fight ableism within our society. This article will outline how to examine their own Positionality, Opportunity, Wokeness, Empathy, and Reflexivity (POWER) to act in advocacy and allyship dismantling ableism and fostering social justice.
Dogs can play an important role in life of a person with a disability. This support revolves around the human-animal bond. Dogs creates a sense of connectedness, belonging, and unconditional love. Dogs provide their owners with a reason to socialize and exercise, and are described as social lubricants, helping their owner to connect to other humans. Interacting with dogs helps reduce stress alleviate conditions such as depression and anxiety while increasing empathy and self-esteem. Many of the impacts dogs provide are preventative factors for suicide. A correlation potentially exists between disability and suicide risk. Moses (2018) posits that disability is a fundamental cause of suicide behavior because disability can be a chronic source of pain or stress that can spread to all aspects of life that results in social isolation and a feeling of being a burden to others. Yet, dog ownership may be balancing force to prevent this suicide ideation.
Adults with intellectual and developmental disabilities (IDD) are more likely to have poorer health outcomes and a shorter lifespan than the general population. Health is influenced by many factors, two of which are disease burden and engagement with primary and preventive care. In this presentation, we will share our study findings of common medical conditions and primary and preventive care utilization in 158 adults with IDD, as well as common caregiver concerns. We will bring our findings to life through a first-hand account from a parent of an adult with IDD, who will share her personal journey of supporting her son to successfully access necessary preventative care, and the impact this had on their family.
Nick Sampson has been working at Home Depot for over 17 years. He has had worked hard to find and maintain that employment. Mr. Sampson has had various experiences being supported both positively and also in ways that could be considered, offensive, demeaning, and dehumanizing. We want to share his first-hand experience and use his perspective to discuss how impactful the DSP/Person supported relationship can be and what steps we can take to generate best-outcomes for people we support.
Experiences of belonging are a basic human need and the accessibility of belonging might look different for individuals labeled with IDD due to historic and ongoing exclusion. This qualitative, participatory study explored how adults with intellectual and developmental disabilities defined belonging, reflected on experiences of belonging, and co-constructed a conceptualization of belonging together. With a focus on presumptions of competence and epistemic agency, this project includes those with lived experiences in “the process of science†(Shogren, 2023).This presentation seeks to share critical implications (for schools, families, and communities) about the issues of safety and accessibility as taken up by co-researchers during our conversations.
This presentation provides findings from a qualitative document analysis study that examined 20 years of national advocacy documents focused on protecting children from the misuse of restraint and seclusion in U.S. schools. A systematic search resulted in the identification of 35 national advocacy documents. We used a qualitative inductive coding approach to identify themes across education, law, and policy issues, as well as, accounts of child abuse resulting from the misuse of restraint and seclusion in U.S. schools. Our findings bring attention to human rights and IDEA violations in U.S. schools and current challenges at the national level to protect children from the misuse of restraint and seclusion through federal legislation. Attendees will learn to (a) recognize the misuse of restraint and seclusion; (b) impacts on the safety of students, (c) resulting educational, law, and policy issues, (d) proposed federal legislation, and (e) ways to advocate for the protection of students.
Sparked at the 2022 TASH Conference, the Neurodiversity Advisory has been actively meeting and exploring neurodiversity and what it means for TASH. In this session, we will share resources like updated Terms and Definitions and Elements of Neurodiversity Affirming Practice. We will provide an update on what we're learning related to neurodiversity and ABA. Using the resources developed and insights gained through the work of the Advisory, participants will explore proposed recommendations for TASH to embrace neurodiversity and advance neurodiversity-affirming practice.
Michael McSheehan’s life work has been at the intersection of disability and K-12 education. During his twenty years at the University of New Hampshire, he worked on projects for assistive technology, inclusive education, alternate assessment, RTI & PBIS, and MTSS. Michael helped... Read More →
I am Leah Kelley, EdD, (she/her) an education consultant, writer, activist, parent, and teacher educator, who identifies as Neurodivergent and otherwise disabled. My research interests include connecting disability studies in education (DSE) to educational practice, strength-based... Read More →
This study will utilize a mixed-methods design (i.e., survey with follow-up interviews) to explore the training experiences of pediatric residents and their perceived self-efficacy in caring for children with disabilities and children with medical complexities. The goal of this study is to identify the needs, resources, and gaps in training and preparation for pediatric residents to work with children with disabilities (including CMC).
Dr. Sarah Douglas is an Associate Professor at Michigan State University where she directs the RADD lab (Research on Autism and Developmental Disabilities). Her work focuses on paraeducator supports, augmentative and alternative communication, children with extensive support needs... Read More →
Friday December 6, 2024 5:45pm - 7:15pm CST
3RD Floor - Storyville HallHyatt Regency, 601 Loyola Avenue, New Orleans, LA 70113
Whether they have a disability or not, a person must identify with disability in order to fully engage with the movement for a more equitable and inclusive society. This presentations shares a grounded theory of educators’ conceptions of disability based on interviews with preservice general educators and teacher education instructors. The theory, identification with disability, is a bridge between narrative imagination (Nussbaum, 1997) and disability identity (Darling & Heckert, 2010; Forber-Pratt & Zape, 2017). Narrative imagination is the ability to understand and share the feelings and experiences of others, and a strong disability identity requires disability acceptance, alignment with the social model of disability, and involvement with collective social change. Educators and family members who identify with disability are most equipped to empower individuals with complex support needs and collaborate to create a more socially just, democratic, and inclusive society.
Parents advocate in a variety of ways for their children with disabilities to access services and supports in inclusive settings. Given the importance of parent advocacy at every level, it is essential to understand the factors that influence parent legislative advocacy. This study aimed to identify the correlates of individual, peer, and systemic advocacy among parents of children with disabilities. Altogether, 78 parents of children with disabilities participated in this six-site study. Data were analyzed using baseline data prior to participants completing a civic engagement program. We conducted linear regressions to identify correlates of parent advocacy levels. We found that disability connectedness significantly correlates with individual, peer, and systemic advocacy. Additionally, moral conviction was a significant correlate of individual advocacy. The results highlight the importance of fostering disability connectedness and enhancing moral conviction to boost advocacy efforts
Zach Rossetti, Ph.D., is an Associate Professor of Special Education in the Teaching and Learning Department at Boston University's Wheelock College of Education & Human Development. His research examines the social belonging and participation of people with intellectual and developmental... Read More →
Saturday December 7, 2024 11:15am - 12:15pm CST
3RD Floor - Ballroom: Celestin FHyatt Regency, 601 Loyola Avenue, New Orleans, LA 70113
Guardianships, intended as protective measures, are often overused and overly restrictive, depriving individuals of autonomy and decision-making skills. This overreliance fails to recognize the potential of individuals with disabilities and overlooks less restrictive alternatives, such as supported decision-making. Guardianships can also allow entities like medical and service providers to avoid making reasonable accommodations for people with disabilities. The Maine Protection and Advocacy Agency has spearheaded guardianship policy reform for over two decades, culminating in setting a national precedent by being the first to adopt the progressive 2017 Guardianship, Conservatorship, and Other Protective Arrangements Act. This presentation will explore Maine’s innovative strategies, offering insights and lessons. Attendees will understand the successes and challenges in advocating for less restrictive alternatives. Join us to contribute to the guardianship reform dialogue.
The TASH Neurodiversity Advisory has created a resource articulating the Elements of Neurodiversity Affirming Practice. In this session, participants will use the Elements resource to reflect on current issues in education, employment, communication access, human rights, and community living. We will explore what our practice looks like and doesn't look like when we embrace neurodiversity and advance neurodiversity-affirming practice.
Michael McSheehan’s life work has been at the intersection of disability and K-12 education. During his twenty years at the University of New Hampshire, he worked on projects for assistive technology, inclusive education, alternate assessment, RTI & PBIS, and MTSS. Michael helped... Read More →
I am Leah Kelley, EdD, (she/her) an education consultant, writer, activist, parent, and teacher educator, who identifies as Neurodivergent and otherwise disabled. My research interests include connecting disability studies in education (DSE) to educational practice, strength-based... Read More →
Associate Professor, Special Education, California State University, Northridge
Amy Hanreddy is an associate professor in the Department of Special Education at California State University, Northridge. She teaches about inclusive and collaborative practices, with an emphasis on strategies that provide students with disabilities access to meaningful instruction... Read More →
Vice President of Special Education Services, Villa Esperanza Services
Robyn has been improving systems and supports for children, youth and families for over 25 years. Her first role model was Annie Sullivan, teacher and friend to Helen Keller. She is a lifelong advocate for children who struggle to make their gifts and needs known.Robyn’s experience... Read More →
This session aims to develop a deeper understanding of Big T (capital "T") and little t (lowercase "t") trauma in students with significant needs, focusing on the educational and psychological impacts. By distinguishing the nuanced effects of Big T and little t trauma, the session seeks to inform more tailored intervention strategies and support systems in educational settings. The importance of trauma-informed educational practices and the need for continuous professional development for educators to recognize and address the spectrum of trauma. Ultimately, this session underscores the critical role of a supportive, trauma-sensitive environment in fostering resilience and academic success among ALL students including those who demonstrate significant needs.
Autism as originally defined by Dr. Sukhareva, and later, Dr. Asperger, was understood as a condition that could be found in any segment of the population, discriminating by neither sex nor ethnicity. However, when Leo Kanner redefined and codified autism diagnosis in the United States, his definition explicitly leaned on then-contemporary sexism, and implicitly on racism and classism, to define “real†autistics. This talk will explore this history and discuss its impact on autistics in the generations since, ranging from ongoing differential access to formal diagnosis, to disproportionate pathologization and violence against BIPOC autistics in institutional settings, to how ideas about "female autism,†race, and wealth pervade debates about self-diagnosis. We will then open into a discussion about intersectionality, implicit and explicit bias, and promoting autistic advocacy that centers the concerns of historically marginalized groups.
